This week in KeratoScoop: 10% coupon. NPR interview. GSLS meeting - WOW! Upcoming events. Safety alert - no tap water! Various surveys. Dry eye drug pipeline. Calling all mental health professionals. And more. 

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KeratoScoop

Rebecca's Dry Eye & Scleral Lens Newsletter
January 30, 2019 - 
Volume 11 - Issue 1

Shadow

In this issue:

Scleral lens topics

  • 10% Shop coupon
  • GSLS meeting (scleral lenses)
  • Upcoming events
  • Safety alert: No tap water on scleral lenses!
  • Survey: International scleral lens users - sourcing solutions
  • Product shortage updates
  • New products coming

Dry eye topics

  • NPR interview about the dry eye ointment shortage
  • Survey: Local dry eye meetings
  • Survey: CPAP & moisture goggles
  • Update on The Dry Eye Foundation
  • Upcoming events
  • Dry eye drug pipeline
  • Product shortage updates
  • Dry eye & cosmetics podcast
  • Calling all mental health professionals!

Psst. Want to give back?

If you find any of these emails or sites helpful in your eye journey, please consider helping to support us. Right now there are a few ways:

1) The DryEyeShop's Working Capital Campaign. Even if giving isn't your thing, I would especially encourage optometrists and scleral lens users to read all about what we do.

2) You can contribute to The Dry Eye Foundation via GoFundMe or check. Details here.

3) You can support me personally on Patreon

Discount code 10off

10% off orders of $50 or more with discount code 10off. As always... cannot be combined with other offers, and when you click on the link, the discount code will be added and you'll see it during the checkout process.

This coupon originally was going to expire today but I didn't manage to send out a reminder on Monday as intended, so I've extended it to February 3.

SURVEY CENTER

Please take a few minutes to complete surveys that may be relevant to you. We use this information to help educate both patients and doctors about our needs!

Got dry eye?

Please complete this survey from The Dry Eye Foundation about the potential for local dry eye meetings.

The survey just takes a couple of minutes and will be helpful in guiding The Dry Eye Foundation's project planning over the next couple of years. (By the way, the Foundation will be running a much larger, broader survey of dry eye patients' needs soon, so keep an eye out for that!)

CPAP and dry eye goggles?

Please complete this survey by The Dry Eye Shop about your experience of which moisture goggles are compatible with your CPAP mask.

We are trying to create some better guidance to help people get the appropriate dry eye goggle to protect their eyes at night.

International scleral lens user?

Please complete this survey by The Dry Eye Shop about scleral lens solution brands and where you find them, if you are NOT in the USA.

We are trying to create a reference list to help people find scarce resources in their location.

Thank you in advance!

International scleral lens supply survey

To my GSLS sponsors:

Big shout out to everyone who contributed to my GoFundMe account to attend the GSLS meeting. I knew it would be good, but I had no idea how very, very good it would be. I learned a ton and had some great meetings. 

I have blogged very, very extensively about this on dryeyeshop.com, so I'm not going to attempt to cover it here, but if you're interested:

See my GSLS blog posts here. 

Getting our voices heard: NPR

Some of you heard my interview on NPR's Here and Now with Robin Young yesterday. They approached me a few weeks ago about the Refresh PM ointment shortage, and that was the focus of the interview, though I did manage to speak to a few broader issues about dry eye as well. I am so grateful for the opportunity to speak to some of our needs. The response has been so exciting!

Listen to NPR interview

Upcoming events

March 23 (Houston) NKCF Family Symposium for Keratoconus patients in Houston. I'll be at this one. I really enjoyed last year's events at Irvine and UNC. More details and registration form will be available sometime in the next few weeks.

April 5-6 (Boston) - SSF National Patient Conference: "Conquering the Complexities of Sjogrens" Click here for brochure and registration form.

Know of an event that should be listed here? Please send details!

No more tap water.

Safety alert: No more tap water on your lenses.

  • Read more here.
  • This applies to ALL contact lenses - not just soft lenses.
  • If your lens care instructions still include using tap or other water to rinse off cleaners, please read our information and take it to your lens provider for discussion of the latest safety standards.
  • Join the lively conversations about this on My Big Fat Scleral Lens.

Dry eye drug pipeline

Wondering what's in the works? New drug approvals for dry eye are so very rare that it can feel like nothing is being done, but there's actually a surprising amount of development going on. Here's a summary of drugs that are being studied!

 

Makeup fan?

Lots of us have had to quit eye makeup altogether, of course, because of dry eye. But for those who do wear makeup and want to learn (for example) how to avoid harmful ingredients, the Dry Eye Divas have a blog and podcast you might be interested in.

New stuff coming!

  • A new preservative free saline is going to be on the market pretty soon. 
  • A new Hydra-PEG friendly cleaning solution is due out soon.
  • The Tangible Boost product we've been waiting for might be awhlie yet.
  • A new Avenova lookalike is coming soon.
  • More details in next week's issue!

Product shortage updates

New! Shortage tracker

We have a new page dedicated to tracking ongoing manufacturer backorder issues affecting dry eye and scleral lens patients. We call manufacturers at regular intervals for updates and post them on this page.

Scleral lens supplies

  • Unique pH lens cleaner (Menicon): Current estimate is mid February.
  • LacriPure saline (Menicon): Current estimate is late April.

Dry eye products

  • Refresh PM ointment (Allergan): Current estimate is late summer.
  • Systane Ointment, Systane Gel, Genteal Ointment and Genteal Gel: We're being told next week, but... we've been told that an awful lot of times over the past several months. We'll call again next week for an update.

Dry Eye Foundation update

Slow but steady progress!

  • Paperwork filed with IRS; now comes the hurry up and wait for a tax exempt determination letter. Shutdown didn't help, but it's slow even without that. 
  • Website launched: The Dry Eye Foundation
  • Conversations, conversations and more conversations. 
  • Working on designing surveys for all of our visitors that will help us identify the most important needs - according to YOU, not us - and start reaching out for collaboration on projects.

Calling mental health professionals.

Dear MHPs on my mailing list:

One of The Dry Eye Foundation's top priorities is figuring out how we can help with the overlooked but high-impact mental health impact of dry eye disease. I would really, really love to have help as we start to scope out the needs and ideas for what could help. Please reach out to me by email with "MHP" in the subject line if you are interested in helping. It could be as simple as a single conversation (I'm having a lot of those lately) or if there is enough interest, we can put together a working group. 

More information about this.

Ways you can help

Small things are really, really helpful to us as a small business-and-organization trying to do a little good in our little corner of the world! If you can do any of the following for us, we'd be so grateful! And thank you so much to those who have!

  • Like DryEyeShop and DryEyeZone on Facebook
  • Follow DryEyeShop and DryEyeZone on Twitter
  • Purchase something once in awhile at dryeyeshop.com that you could have gotten somewhere else cheaper. 
  • Show your doctor a product you're using that you got from us. Share your doctor's name with us so that we can ask them if they would like some literature for their office.
  • Pledge $1, $3, $5, $10, or $25 monthly on Patreon towards our education work.
  • Kick in $25 to our working capital campaign! (Just want to be perfectly clear that this is NOT related to the nonprofit foundation - it's specifically for the shop.)

Are we there yet?

I've been trying to get this newsletter written and sent for days. There is SO much more that I want to say, but... there's always next week!

Have a great rest of the week, everyone!

Rebecca

 

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